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ID 55166
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Author
Kondo, Mariko Graduate School of Health Sciences, Okayama University.
Mori, Kazuo National Hansen’s Disease Sanatorium Residents’ Council, National Sanatorium Oshima-Seisho-en
Nomura, Hiroshi National Hansen’s Disease Sanatorium Residents’ Council, National Sanatorium Oshima-Seisho-en
Kadowaki, Hanako National Sanatorium Oshima-Seisho-en
Watanabe, Makiko National Sanatorium Oshima-Seisho-en
Doi, Akemi National Sanatorium Oshima-Seisho-en
Shima, Sayaka Yodogawa Christian Hospital
Abstract
Historically, Hansen’s disease patients suffered from discrimination because their physical features changed due to the bacterium Mycobacterium leprae (M. leprae) and made them “ugly” in the eyes of society. Former Japanese governments saw them as a national disgrace and forced them to reside in leprosaria. Since the law requiring isolation continued after the silver bullet was developed, survivors could not leave the leprosaria and return to society. Currently, survivors’ average age is 82 and they live in 13 national sanatoriums. When they pass away, the history of Hansen’s disease in Japan will end, so we must record their experiences. We conducted qualitative and inductive studies with survivors. In this chapter, we reconstruct them from the perspective of bioethics and propose several theories surrounding them: (1) How former leprosaria and medical administrations in Japan threatened bioethical principles; (2) the wisdom of aging survivors, who lived through extreme situations, and what real restoration of their rights might look like; and (3) the ethical dilemmas of how we will care for the survivors—who have multiple severe sequelae—until they all pass away. Finally, we will intro
Keywords
stigma
Hansen’s disease
bioethical principles
wisdom
human caring
Note
© 2017 The Author(s). Licensee InTech. This chapter is distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
Published Date
2016-12-29
Publication Title
Bioethics - Medical, Ethical and Legal Perspectives
Publisher
InTech
Start Page
69
End Page
105
ISBN
9789535128472
Content Type
Book
Related Url
isPartOf http://doi.org/10.5772/62798
language
英語
Copyright Holders
https://creativecommons.org/licenses/by-nc-nd/4.0/deed.ja
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